Shyamal Sharma, Institute on Healthcare Systems, Brandeis University Heller School

Felicia Heykoop, Community Engagement Core Superfund Research Center, Harvard TH Chan School of Public Health

Good morning, all! Sarah Stanlick, Worcester Polytechnic Institute

Noelle Weicker, Tufts Medical Center

Alero Aikhuele, Clark University

Christine St Laurent, University of Massachusetts Amherst

Christine Tosti MEd currently interning with Worcester's Regional Environmental Council

Sara Shostak - Brandeis University

Cathy Leslie, MGH Institute of Health Professions, Boston. OT Faculty/research.

Rawan AlHeresh, MGH Institute of Health Professions

Jenna Croteau, UMass Amherst

Hi all! Minji Lee, Umass Amherst

Good morning, Ana Cristina Lindsay, UMass Boston

Risa Silverman, Umass Amherst

Hi. Sherry Weitzen UMass Chan/Baystate

Teri Aronowitz, Professor at Tan Chingfen Graduate School of Nursing, UMass Chan Medical School

Ana Uribe, University of Massachusetts Amherst!

Ann Folker, UMass Amherst

Isabel Emmerick - UMass Chan Medical School Worcester

Good morning! Emma Narkewicz, UMass Chan Medical School

Morning all. Maria Galano, UMass Amherst

Nisha Fahey, UMass Chan Medical School

Karoline Gildemeister, Commonwealth Medicine at Umass Chan Medical School

Bethany Jones, UMass Amherst

Melissa Goulding, UMass Chan

Buenos días, Airín D. Martínez, UMass-Amherst School of Public Health and Health Sciences

Calla Harrington, UMass Amherst

David Cochran, UMass Chan Medical School, Shriver Center

good morning, Leslie Soto, fellowship with illumination institution

Erin DeCou, UMass Amherst

Alexandra Boland- UMass Chan Medical School

Laura Roberts, WPI

Sarah Fprrester. UMASS Med School

Amanda Lessard, Maine Medical Center/Maine Medical Center Research Institute

Alex Wilkins, UMass Med

Laura Hayman, UMass Boston

Daniel Amante - UMASS Med

Helen Lyon MD SM, UMASS Chan Medical School, Pediatrics and Genetics

Kathy James- university of colorado

German Chiriboga - UMass Med

Emma DayBranch, Maine Medical Research Institute

Brother Al Men of Color Health Awareness (Mocha) Community Outreach Ambassador Springfield Ma

Chien-Chi Huang, Asian Women for Health

Syed Hashmi, McGovern Medical School, Houston TX

Taylor Merk - UMass Med

Sarabeth Broder-Fingert, UMASS MED

Bennie Finch (she/her) UMass Chan Med - Lamar Soutter Library - NNLM Region 7

Julie Wright, Exercise and Health Sciences, UMass Boston

Ann Foley, UMass Chan Medical School

Susan Shaw, Health Promotion and Policy, UMass Amherst

Heather-Lyn Haley, she/her, UMass Chan Dept of Family Med & Community Health

Will a recording of this presentation be sent to participants? Thank you~

The presentation will be made available.

Please use the chat is you have any questions for our panelists.

Stephenie Lemon (she series), UMass Chan Medical School, Preventive and Behavioral Medicine

Kimberly Dukes, U Iowa Carver College of Medicine/College of Public Health, she/her

Joohyun Chung, University of Massachusetts Amherst, She/her, College of Nursing,

Linda Brenckle, UMass Chan Medical School, Psychiatry

Sarah Stanlick, she/her, WPI, Department of Integrative and Global Studies and Director, Great Problems Seminar

Amy Sommer, Clinical Director for the Center for Early Relationship Support. I am a "career" community partner, most often partnering with academic evaluators.

Che Anderson, UMass Chan Medical School, Community & Government Relations

Karina Scott, Worcester Division of Public Health, Program Manager, ( She, Her)

Zion Iverson she/her, Tufts Clinical and Translational Science Institute, Project Coordinator

Lynley Rappaport, Public Health Institute of Western Mass

Will the slide decks be shared with participants?

If your name is incorrectly listed, please click on 'participants', you will be the person at the top of your list. Click on the name and select 'more', than 'rename.'

If you have trouble changing your name, send a direct chat to AV-Celina.

The presentation is being recorded and will be shared!

Thank you, Stephanie!

• Share your perspectives• Respect differences (experiences, opinions, etc.)• Ask questions• Listen to understand• Share the “air time”• Open yourself to learning• Disagree (respectfully!) with us and each other

For diversity, we usually have something about confidentiality

Equitable, reciprocal engagement around a shared community challenge to learn, build collective power, and make positive change around that shared challenge

“No research about us without us”

CER is research with a community, not ON a community

Where you ask the community what is import to them

Bi-directional engagement in the development of research questions and attainment of answers

reaching out and including the whole community

Know the community

shared power from beginning of all decision making

to grow together

Shared decision-making

Research that is shaped and driven by the community that it intends to serve

the community's voice is most important

Community participatory action research

Their needs and priorities

Making sure that a community benefits from the work being done

Having community representation in every step of the research process starting from asking questions

Including the voices of your community in a phases of the research process

Sharing knowledge production and creating solutions collaboratively with the communities affected to produce social change and social justice

including working class and low/no income individuals with humility and kindness

Shared goals, process, and decision making to understand and address community-defined issues.

Including community members as partners in the research

Cultural sensitivities

Research that meets the needs of both organizations: community organization and the academic site.

Research that begins with asking any group not just what they might want/need but if/how/when they believe research could help and how they would like to be involved (not ever just subjects(

working with the community - together and equally - to achieve common goals

no hidden agenda

"Subjects" are actors in the research process, as the researchers

Collaboration with community partners and researchers that shares autonomy and direction

partnership on common agenda

Shared power, resources, data, ownership in a co-learning, equitable partnership

How the research will be used to serve the community, and not research for the sake of research.

This factor of language is a so important! Health Literacy definitions have changed for Healthy People 2030 to include two parts: a client's health literacy and the ability of health organizations, including researchers, to be a health literate organization.

Please remember to mute if you are not talking.

Discuss at the outset sustainability strategies for retaining and building on gains.

Among other factors, access to funding/resources, community leadership, and ongoing engagement with external collaborators could be crucial to sustainability.

The dogs were very engaged & Dr. Szegda did a great job of presenting with the added participation :-)

I'm unable to unmute

How do you also make sure your academic or organizational community is engaged in addition to the geographic community? (to avoid the sense of a helicopter project)

I am wondering if any of your groups have used Implementation Science frameworks or models. And if so, how that related to applying for funding for Community-Academic Partnerships.

What type of support did you use from your academic institution?

Amy, did you track/measure these process issues to report in publications?

Thank you to all of the participants for your time and attention! We hope that you can stay with us for the second hour of today's workshop-until 11ET.

Could the article mentioned be shared in the chat?

Thank you for this great presentation and discussion. I have to leave for a meeting.

https://ebrary.net/178814/sociology/power_positionality_community_engaged_work_community_based_participatory_research

What are your suggestions for utilizing research resources for someone that is NOT involved in health research? I work for a non-profit and sometimes engage in community research for grants reporting, but at a very baseline level.

Thank you everyone for your questions; @Cathy Leslie and others, please feel free to connect asommer@jfcsboston.org if my perspective would be helpful. (The short answer is i don't track/measure, but Lili may.... and I'm trained in IS a bit and feel like we are implicitly using things like rapid PDSA without making it explicit...)

We will be sure to get to the questions in the chat during the Q&A at the end the panel session.

Thank you!

Agree with @Amy, tracking the process started as part of our quality improvement / PDSA work. sharing that process is a whole other challenge :)

Very interesting! Where is that best practices for CBPR manual located online?

We will compile any resources discussed today and next week and send them out by email after next week's workshop.

Thank you!

There are multiple publications, but I will share with Kathleen and Sarah the document that was drafted by the Center for Community Health Equity Research and the Holyoke Community-Campus Compact. There are pubs listed on the document and I can also share the citation to the chapter.

Do you know of resources (e.g. funding, materials) to conduct language translation and interpretation services for research. (Or is there a repository of already translated documents that we can pull from and add to, e.g. mental health screening, community health needs assessment). Language in-access is a real barrier in engaging multiple Asian ethnic communities

Thank you, Lili~

Consolidated Framework for Implementation Research = CFIR

I appreciate you naming the resources of an academy outside just the research - networking, space, graphic design, free training/ed opportunities that are open to partners, etc.

what specific steps and examples do panalists have regarding including working class and low/no income community members in conversations?

http://spiral.tufts.edu/topic_list.shtml has selected Patient Information in Asian Languges

The CBPR best practices document is available here: https://www.umass.edu/health-equity/resources

Thanks, Susan!

I would like to add the Best Practices Document has community input… not just academic

Language is important: Low income vs. Under-resourced, high-risks vs. under-served, etc

CBOs are not translation/interpretation agencies - if they are asked to do these tasks, they should be compensated for their efforts

Yes, Dr. Huang! Language and representation matter. They need to be paid for these services that external consultants charge by the hour!

Our Tufts grant specifically includes funding for our community advisory panel which I really appreciated.

Sometimes there are translation services through medical institutions for funded research.

@Airin: I’m not a Dr but I’m a breast cancer survivor turn patient advocate and the Executive Director of Asian Women for Health

Thank you Panelists!!!

Thank you all. I’m sorry I have another meeting see you all next time

Thank you, for this great webinar. I have a conflict and 10:30 and need to step away just before so this seems like a good time for that so as not to be disruptive of breakout rooms. Thank you for organzing and presenting this. It has been very informative.

IntroductionsWhat are your interests/areas of work?What resonated with you from the panel? What did you want to learn more about?How have you thought about and tried to incorporate equity when there are potential power imbalances in teams you work with? Whose job is it to do that?How might you apply CEnR in your future work?

My speakers have stopped working and I tried another computer... I wll also drop off but with much regret! Thank you so much!

Many thanks to all! Sorry I have to sign off now. Looking forward to Part II next week!!

Thank you — this was both informative and inspiring. I have to go to another meeting, but look forward to next week’s session.

Hi. I’m sorry, I have to run off. Will be back next week

wasn’t quite 10:45 lol

I really want to join and ongoing research

We learned about community engaged projects in our group

especially on health equity

-The disconnect between institutional time-frame & wants vs. community needs/involvement, how to push-back to institutions & funders in the interest of community partners-How to obtain/justify funding needed to engage the community & compensate appropriately-People like the idea of CBEnR, but a lag time on how early you engage people/build out in timeline, be willing to adjust outcomes/methods/publications to do deep community engagement-How do we avoid the dynamic where you put a burden on the community group to train/educate professors on anti-racism to be able to have a healthy community partners in the first place

experiences working in international partnerships

Some members in our group would love to learn more about getting started (timelines and paths) with community engaged projects when those partnerships/projects are not already in place (particularly in non-academic roles)

^^^

^^^ We also discussed getting started. Emphasizing that relationship building before even working together on a project can take a year on a fast track

Sherry, Susan, Janice and I had a great conversation that surfaced a few threads: community voice, sustainability, the power of self-determination and being in it for the right reasons, and developing relationships; we talked about the importance of keeping relationships between the grant cycles and, more importantly, making relationships outside of research funding applications

Our discussion (German, Heather-Lyn, Felicia, Gina) focused on support from institution and IRB. Expectations from academia that are not realistic in the community. Ways to get our academic projects into more diverse communities rather than using the close, easier to reach. German shared an experience of a project that ended badly because of the faults in community involvement.

We also talked about identifying power differentials

^^ Our discussion team talked about this, too.... that community partners can be very eager to talk power differentials

Is it possible to save the chat?

collaborative agreement can somewhat help power differential

We talked about power differentials and needing more guidance in this area

Sharing information about funders that truly encourage community engagement and are willing to adjust timelines to accommodate it (one example was AmeriCorps funding project extending a 3 year project for an extra year). Also how do we educate funders about what community engagement entails (moving beyond a buzzword or extra points on grant proposals).

Intent vs. Impact - that’s why language is important

^^ yes!

Resource: https://www.asianwomenforhealth.org/anti-racism.html

Thank you!

Thank you!

thank you.

Thank you!

Thank you!

This was such an incredible webinar, thank you for everyone for presented and participated! I look forward to applying this in my work, checking out some of the resources from the chat, & can't wait for part 2.

I like that the breakout room was very small so everyone had a chance to talk (although more time would have been nice :))

Thank you!

Thank you!

Thanks!

thank you

Thank you!

Thank you!

See you next week~ Thank you!

Sarah did great fielding my discomfort many thanks

Loved the organization and flow of the session. Only change would be to add in 1 minute warning in breakout rooms to know when it will be ending, and maybe have breakouts be longer.

Thank you

This was a great session / - 2 hours went weirdly fast!

Break out room could be upto 8

I hope to see more CBOs and community members participate in part 2

more time during the breakouts would be great

Many pluses to hearing the panel! great to see their interactions. delta: could they describe their projects just a bit more so we know the goals.

Plus - I really appreciated having a specific example of a community-academic partnership with the panel, and would love to hear more examples. Delta - tell us more of the details/logistics of the partnership, maybe with a few slides even.

Save chat appears to be disabled for me. Might just be me. 🙂

Thank you great information

Thank you all so much!

Thank you All! Fabulous bubble!