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Building Community-Academic Research Partnerships - Shared screen with speaker view
shyamal sharma
20:27
Shyamal Sharma, Institute on Healthcare Systems, Brandeis University Heller School
Judith Ockene
20:47
Felicia Heykoop, Community Engagement Core Superfund Research Center, Harvard TH Chan School of Public Health
Sarah Stanlick, WPI, She/Her
21:45
Good morning, all! Sarah Stanlick, Worcester Polytechnic Institute
Judith Ockene
21:52
Noelle Weicker, Tufts Medical Center
Alero Aikhuele(She/her)
21:53
Alero Aikhuele, Clark University
Christine St Laurent
21:56
Christine St Laurent, University of Massachusetts Amherst
Christine Tosti
21:57
Christine Tosti MEd currently interning with Worcester's Regional Environmental Council
Sara Shostak
21:58
Sara Shostak - Brandeis University
Cathy Leslie, MGH IHP
21:59
Cathy Leslie, MGH Institute of Health Professions, Boston. OT Faculty/research.
Rawan AlHeresh
21:59
Rawan AlHeresh, MGH Institute of Health Professions
Jenna Croteau
22:00
Jenna Croteau, UMass Amherst
Minji Lee
22:04
Hi all! Minji Lee, Umass Amherst
Ana Cristina Lindsay
22:06
Good morning, Ana Cristina Lindsay, UMass Boston
Judith Ockene
22:07
Risa Silverman, Umass Amherst
Sherry Weitzen
22:08
Hi. Sherry Weitzen UMass Chan/Baystate
Teri Aronowitz (she/her)
22:08
Teri Aronowitz, Professor at Tan Chingfen Graduate School of Nursing, UMass Chan Medical School
Ana Uribe (she/her)
22:09
Ana Uribe, University of Massachusetts Amherst!
Ann Folker
22:10
Ann Folker, UMass Amherst
Isabel Emmerick
22:12
Isabel Emmerick - UMass Chan Medical School Worcester
Emma Narkewicz
22:13
Good morning! Emma Narkewicz, UMass Chan Medical School
Maria Galano (she/her)
22:16
Morning all. Maria Galano, UMass Amherst
Nisha Fahey
22:17
Nisha Fahey, UMass Chan Medical School
Judith Ockene
22:18
Karoline Gildemeister, Commonwealth Medicine at Umass Chan Medical School
Bethany Jones
22:21
Bethany Jones, UMass Amherst
Judith Ockene
22:28
Melissa Goulding, UMass Chan
Airín D. Martínez (she/ella) UMass-Amherst
22:36
Buenos días, Airín D. Martínez, UMass-Amherst School of Public Health and Health Sciences
Calla Harrington
22:47
Calla Harrington, UMass Amherst
David Cochran
22:55
David Cochran, UMass Chan Medical School, Shriver Center
Judith Ockene
23:01
good morning, Leslie Soto, fellowship with illumination institution
Erin DeCou (she/her)
23:03
Erin DeCou, UMass Amherst
Alexandra Boland
23:03
Alexandra Boland- UMass Chan Medical School
Laura Roberts
23:05
Laura Roberts, WPI
Sarah Forrester
23:15
Sarah Fprrester. UMASS Med School
Amanda Lessard
23:19
Amanda Lessard, Maine Medical Center/Maine Medical Center Research Institute
Alexander Wilkins
23:21
Alex Wilkins, UMass Med
Laura Hayman
23:29
Laura Hayman, UMass Boston
Daniel Amante
23:34
Daniel Amante - UMASS Med
Helen Lyon -she
23:35
Helen Lyon MD SM, UMASS Chan Medical School, Pediatrics and Genetics
Judith Ockene
23:36
Kathy James- university of colorado
Judith Ockene
23:39
German Chiriboga - UMass Med
Emma DayBranch
23:43
Emma DayBranch, Maine Medical Research Institute
Judith Ockene
23:50
Brother Al Men of Color Health Awareness (Mocha) Community Outreach Ambassador Springfield Ma
Judith Ockene
24:08
Chien-Chi Huang, Asian Women for Health
Syed Hashmi
24:11
Syed Hashmi, McGovern Medical School, Houston TX
David Cochran
24:32
Taylor Merk - UMass Med
Sarabeth Broder-Fingert (she/her)
24:36
Sarabeth Broder-Fingert, UMASS MED
Bennie Finch (she/her)
24:39
Bennie Finch (she/her) UMass Chan Med - Lamar Soutter Library - NNLM Region 7
Julie Wright UMB
24:43
Julie Wright, Exercise and Health Sciences, UMass Boston
Ann Foley
25:11
Ann Foley, UMass Chan Medical School
Susan Shaw
25:29
Susan Shaw, Health Promotion and Policy, UMass Amherst
Heather-Lyn Haley (she,her) UMass Chan
26:00
Heather-Lyn Haley, she/her, UMass Chan Dept of Family Med & Community Health
Cathy Leslie, MGH IHP
28:18
Will a recording of this presentation be sent to participants? Thank you~
Stephenie Lemon
28:40
The presentation will be made available.
Stephenie Lemon
29:01
Please use the chat is you have any questions for our panelists.
Stephenie Lemon
30:57
Stephenie Lemon (she series), UMass Chan Medical School, Preventive and Behavioral Medicine
Kimberly Dukes she/her
31:12
Kimberly Dukes, U Iowa Carver College of Medicine/College of Public Health, she/her
Joohyun Chung
31:13
Joohyun Chung, University of Massachusetts Amherst, She/her, College of Nursing,
Linda Brenckle
31:28
Linda Brenckle, UMass Chan Medical School, Psychiatry
Sarah Stanlick, WPI, She/Her
31:36
Sarah Stanlick, she/her, WPI, Department of Integrative and Global Studies and Director, Great Problems Seminar
Amy Sommer, JF&CS Greater Boston
32:10
Amy Sommer, Clinical Director for the Center for Early Relationship Support. I am a "career" community partner, most often partnering with academic evaluators.
Che Anderson
32:19
Che Anderson, UMass Chan Medical School, Community & Government Relations
Judith Ockene
32:50
Karina Scott, Worcester Division of Public Health, Program Manager, ( She, Her)
Zion Iverson
33:05
Zion Iverson she/her, Tufts Clinical and Translational Science Institute, Project Coordinator
Lynley Rappaport
33:43
Lynley Rappaport, Public Health Institute of Western Mass
shyamal sharma
34:18
Will the slide decks be shared with participants?
Stephenie Lemon
34:45
If your name is incorrectly listed, please click on 'participants', you will be the person at the top of your list. Click on the name and select 'more', than 'rename.'
Stephenie Lemon
35:00
If you have trouble changing your name, send a direct chat to AV-Celina.
Stephenie Lemon
35:13
The presentation is being recorded and will be shared!
shyamal sharma
36:11
Thank you, Stephanie!
Sarah Goff (she/her/hers)
37:48
• Share your perspectives• Respect differences (experiences, opinions, etc.)• Ask questions• Listen to understand• Share the “air time”• Open yourself to learning• Disagree (respectfully!) with us and each other
Jules Trobaugh (she series) Diversity Mgr
39:43
For diversity, we usually have something about confidentiality
Sarah Stanlick, WPI, She/Her
40:36
Equitable, reciprocal engagement around a shared community challenge to learn, build collective power, and make positive change around that shared challenge
Sarah Forrester
40:43
“No research about us without us”
Felicia Heykoop
40:47
CER is research with a community, not ON a community
Jules Trobaugh (she series) Diversity Mgr
40:49
Where you ask the community what is import to them
Germán Chiriboga
40:50
Bi-directional engagement in the development of research questions and attainment of answers
Karoline G
40:51
reaching out and including the whole community
shyamal sharma
40:51
Know the community
Risa Silverman
40:52
shared power from beginning of all decision making
Minji Lee
40:52
to grow together
Binta Barry
40:55
Shared decision-making
Noelle Weicker
40:55
Research that is shaped and driven by the community that it intends to serve
Julie Wright UMB
40:57
the community's voice is most important
Teri Aronowitz (she/her)
40:57
Community participatory action research
shyamal sharma
41:04
Their needs and priorities
Alexander Wilkins
41:08
Making sure that a community benefits from the work being done
Rawan AlHeresh
41:09
Having community representation in every step of the research process starting from asking questions
Linda Brenckle
41:09
Including the voices of your community in a phases of the research process
Airín D. Martínez (she/ella) UMass-Amherst
41:09
Sharing knowledge production and creating solutions collaboratively with the communities affected to produce social change and social justice
Christine Tosti she/her MEd
41:10
including working class and low/no income individuals with humility and kindness
Erin DeCou (she/her)
41:10
Shared goals, process, and decision making to understand and address community-defined issues.
Linda Choquette
41:12
Including community members as partners in the research
shyamal sharma
41:15
Cultural sensitivities
Cathy Leslie, MGH IHP
41:15
Research that meets the needs of both organizations: community organization and the academic site.
Amy Sommer, JF&CS Greater Boston
41:28
Research that begins with asking any group not just what they might want/need but if/how/when they believe research could help and how they would like to be involved (not ever just subjects(
Syed Hashmi (he/his)
41:33
working with the community - together and equally - to achieve common goals
Binta Barry
41:39
no hidden agenda
Isabel Emmerick
41:49
"Subjects" are actors in the research process, as the researchers
Christine St Laurent (she/her)
41:55
Collaboration with community partners and researchers that shares autonomy and direction
Brother Al (Mocha)
41:58
partnership on common agenda
Judith Ockene
42:16
Shared power, resources, data, ownership in a co-learning, equitable partnership
shyamal sharma
43:12
How the research will be used to serve the community, and not research for the sake of research.
Cathy Leslie, MGH IHP
43:57
This factor of language is a so important! Health Literacy definitions have changed for Healthy People 2030 to include two parts: a client's health literacy and the ability of health organizations, including researchers, to be a health literate organization.
Sarah Goff (she/her/hers)
45:37
Please remember to mute if you are not talking.
shyamal sharma
46:24
Discuss at the outset sustainability strategies for retaining and building on gains.
shyamal sharma
50:25
Among other factors, access to funding/resources, community leadership, and ongoing engagement with external collaborators could be crucial to sustainability.
Emma Narkewicz
50:39
The dogs were very engaged & Dr. Szegda did a great job of presenting with the added participation :-)
Lili Peacock-Chambers
56:35
I'm unable to unmute
Jules Trobaugh (she series) Diversity Mgr
01:01:33
How do you also make sure your academic or organizational community is engaged in addition to the geographic community? (to avoid the sense of a helicopter project)
Cathy Leslie, MGH IHP
01:12:32
I am wondering if any of your groups have used Implementation Science frameworks or models. And if so, how that related to applying for funding for Community-Academic Partnerships.
Helen Lyon - SHE
01:13:35
What type of support did you use from your academic institution?
Cathy Leslie, MGH IHP
01:14:08
Amy, did you track/measure these process issues to report in publications?
Stephenie Lemon
01:18:13
Thank you to all of the participants for your time and attention! We hope that you can stay with us for the second hour of today's workshop-until 11ET.
Emma DayBranch
01:18:35
Could the article mentioned be shared in the chat?
Ana Cristina Lindsay
01:19:02
Thank you for this great presentation and discussion. I have to leave for a meeting.
Sarah Goff (she/her/hers)
01:19:23
https://ebrary.net/178814/sociology/power_positionality_community_engaged_work_community_based_participatory_research
Judith Ockene
01:19:35
What are your suggestions for utilizing research resources for someone that is NOT involved in health research? I work for a non-profit and sometimes engage in community research for grants reporting, but at a very baseline level.
Amy Sommer, JF&CS Greater Boston
01:20:40
Thank you everyone for your questions; @Cathy Leslie and others, please feel free to connect asommer@jfcsboston.org if my perspective would be helpful. (The short answer is i don't track/measure, but Lili may.... and I'm trained in IS a bit and feel like we are implicitly using things like rapid PDSA without making it explicit...)
Sarah Goff (she/her/hers)
01:22:33
We will be sure to get to the questions in the chat during the Q&A at the end the panel session.
Cathy Leslie, MGH IHP
01:22:45
Thank you!
Lili Peacock-Chambers
01:22:52
Agree with @Amy, tracking the process started as part of our quality improvement / PDSA work. sharing that process is a whole other challenge :)
Calla Harrington
01:23:18
Very interesting! Where is that best practices for CBPR manual located online?
Stephenie Lemon
01:24:10
We will compile any resources discussed today and next week and send them out by email after next week's workshop.
Calla Harrington
01:24:19
Thank you!
Airín D. Martínez (she/ella) UMass-Amherst
01:26:12
There are multiple publications, but I will share with Kathleen and Sarah the document that was drafted by the Center for Community Health Equity Research and the Holyoke Community-Campus Compact. There are pubs listed on the document and I can also share the citation to the chapter.
MyDzung Chu, ADAPT (Tufts CTSI)
01:27:13
Do you know of resources (e.g. funding, materials) to conduct language translation and interpretation services for research. (Or is there a repository of already translated documents that we can pull from and add to, e.g. mental health screening, community health needs assessment). Language in-access is a real barrier in engaging multiple Asian ethnic communities
Cathy Leslie, MGH IHP
01:30:14
Thank you, Lili~
Sarah Goff (she/her/hers)
01:30:19
Consolidated Framework for Implementation Research = CFIR
Amy Sommer, JF&CS Greater Boston
01:31:45
I appreciate you naming the resources of an academy outside just the research - networking, space, graphic design, free training/ed opportunities that are open to partners, etc.
Christine Tosti she/her MEd
01:32:18
what specific steps and examples do panalists have regarding including working class and low/no income community members in conversations?
Chien-Chi Huang/Asian Women for Health
01:33:00
http://spiral.tufts.edu/topic_list.shtml has selected Patient Information in Asian Languges
Susan Shaw
01:34:08
The CBPR best practices document is available here: https://www.umass.edu/health-equity/resources
Airín D. Martínez (she/ella) UMass-Amherst
01:34:15
Thanks, Susan!
Airín D. Martínez (she/ella) UMass-Amherst
01:34:37
I would like to add the Best Practices Document has community input… not just academic
Chien-Chi Huang/Asian Women for Health
01:35:17
Language is important: Low income vs. Under-resourced, high-risks vs. under-served, etc
Chien-Chi Huang/Asian Women for Health
01:36:29
CBOs are not translation/interpretation agencies - if they are asked to do these tasks, they should be compensated for their efforts
Airín D. Martínez (she/ella) UMass-Amherst
01:37:37
Yes, Dr. Huang! Language and representation matter. They need to be paid for these services that external consultants charge by the hour!
Lili Peacock-Chambers
01:38:24
Our Tufts grant specifically includes funding for our community advisory panel which I really appreciated.
Sarah Goff (she/her/hers)
01:38:33
Sometimes there are translation services through medical institutions for funded research.
Chien-Chi Huang/Asian Women for Health
01:39:06
@Airin: I’m not a Dr but I’m a breast cancer survivor turn patient advocate and the Executive Director of Asian Women for Health
Sarah Goff (she/her/hers)
01:40:36
Thank you Panelists!!!
Teri Aronowitz (she/her)
01:41:57
Thank you all. I’m sorry I have another meeting see you all next time
Linda Brenckle
01:42:18
Thank you, for this great webinar. I have a conflict and 10:30 and need to step away just before so this seems like a good time for that so as not to be disruptive of breakout rooms. Thank you for organzing and presenting this. It has been very informative.
Sarah Goff (she/her/hers)
01:43:15
IntroductionsWhat are your interests/areas of work?What resonated with you from the panel? What did you want to learn more about?How have you thought about and tried to incorporate equity when there are potential power imbalances in teams you work with? Whose job is it to do that?How might you apply CEnR in your future work?
Kimberly Dukes she/her
01:43:39
My speakers have stopped working and I tried another computer... I wll also drop off but with much regret! Thank you so much!
shyamal sharma
01:43:46
Many thanks to all! Sorry I have to sign off now. Looking forward to Part II next week!!
Sara Shostak
01:44:54
Thank you — this was both informative and inspiring. I have to go to another meeting, but look forward to next week’s session.
Sherry Weitzen
01:45:27
Hi. I’m sorry, I have to run off. Will be back next week
Jules Trobaugh (she series) Diversity Mgr
02:05:44
wasn’t quite 10:45 lol
Alero Aikhuele(She/her)
02:06:44
I really want to join and ongoing research
Jules Trobaugh (she series) Diversity Mgr
02:06:48
We learned about community engaged projects in our group
Alero Aikhuele(She/her)
02:06:58
especially on health equity
Emma Narkewicz
02:07:05
-The disconnect between institutional time-frame & wants vs. community needs/involvement, how to push-back to institutions & funders in the interest of community partners-How to obtain/justify funding needed to engage the community & compensate appropriately-People like the idea of CBEnR, but a lag time on how early you engage people/build out in timeline, be willing to adjust outcomes/methods/publications to do deep community engagement-How do we avoid the dynamic where you put a burden on the community group to train/educate professors on anti-racism to be able to have a healthy community partners in the first place
Nisha Fahey
02:07:06
experiences working in international partnerships
Christine St Laurent (she/her)
02:07:58
Some members in our group would love to learn more about getting started (timelines and paths) with community engaged projects when those partnerships/projects are not already in place (particularly in non-academic roles)
Gina Mason
02:08:18
^^^
Zion Iverson
02:09:08
^^^ We also discussed getting started. Emphasizing that relationship building before even working together on a project can take a year on a fast track
Sarah Stanlick, WPI, She/Her
02:09:28
Sherry, Susan, Janice and I had a great conversation that surfaced a few threads: community voice, sustainability, the power of self-determination and being in it for the right reasons, and developing relationships; we talked about the importance of keeping relationships between the grant cycles and, more importantly, making relationships outside of research funding applications
Helen Lyon - SHE
02:09:41
Our discussion (German, Heather-Lyn, Felicia, Gina) focused on support from institution and IRB. Expectations from academia that are not realistic in the community. Ways to get our academic projects into more diverse communities rather than using the close, easier to reach. German shared an experience of a project that ended badly because of the faults in community involvement.
Helen Lyon - SHE
02:12:18
We also talked about identifying power differentials
Sarah Stanlick, WPI, She/Her
02:12:47
^^ Our discussion team talked about this, too.... that community partners can be very eager to talk power differentials
Elizabeth Ennen
02:12:54
Is it possible to save the chat?
hai Hoang
02:14:01
collaborative agreement can somewhat help power differential
Ayorkor Gaba
02:14:19
We talked about power differentials and needing more guidance in this area
Emma Narkewicz
02:14:41
Sharing information about funders that truly encourage community engagement and are willing to adjust timelines to accommodate it (one example was AmeriCorps funding project extending a 3 year project for an extra year). Also how do we educate funders about what community engagement entails (moving beyond a buzzword or extra points on grant proposals).
Chien-Chi Huang/Asian Women for Health
02:15:48
Intent vs. Impact - that’s why language is important
Sarah Stanlick, WPI, She/Her
02:16:18
^^ yes!
Chien-Chi Huang/Asian Women for Health
02:16:53
Resource: https://www.asianwomenforhealth.org/anti-racism.html
Rawan AlHeresh
02:18:06
Thank you!
Gina Mason
02:18:08
Thank you!
Julie Wright UMB
02:18:09
thank you.
Emma DayBranch
02:18:10
Thank you!
Christine St Laurent (she/her)
02:18:11
Thank you!
Emma Narkewicz
02:18:12
This was such an incredible webinar, thank you for everyone for presented and participated! I look forward to applying this in my work, checking out some of the resources from the chat, & can't wait for part 2.
Karoline G
02:18:13
I like that the breakout room was very small so everyone had a chance to talk (although more time would have been nice :))
Elizabeth Ennen
02:18:17
Thank you!
Syed Hashmi (he/his)
02:18:17
Thank you!
Minji Lee
02:18:18
Thanks!
Leslie Soto
02:18:19
thank you
Karoline G
02:18:19
Thank you!
Lynley Rappaport
02:18:21
Thank you!
Cathy Leslie, MGH IHP
02:18:22
See you next week~ Thank you!
Christine Tosti she/her MEd
02:18:24
Sarah did great fielding my discomfort many thanks
David Cochran
02:18:26
Loved the organization and flow of the session. Only change would be to add in 1 minute warning in breakout rooms to know when it will be ending, and maybe have breakouts be longer.
Janice Valenzuela
02:18:30
Thank you
Sarah Stanlick, WPI, She/Her
02:18:30
This was a great session / - 2 hours went weirdly fast!
Mustafa Barbhuiya
02:18:35
Break out room could be upto 8
Chien-Chi Huang/Asian Women for Health
02:18:36
I hope to see more CBOs and community members participate in part 2
Karina Scott
02:18:36
more time during the breakouts would be great
Helen Lyon - SHE
02:18:37
Many pluses to hearing the panel! great to see their interactions. delta: could they describe their projects just a bit more so we know the goals.
Erin DeCou (she/her)
02:18:42
Plus - I really appreciated having a specific example of a community-academic partnership with the panel, and would love to hear more examples. Delta - tell us more of the details/logistics of the partnership, maybe with a few slides even.
Elizabeth Ennen
02:19:07
Save chat appears to be disabled for me. Might just be me. 🙂
Brother Al (Mocha)
02:19:11
Thank you great information
Sarah Stanlick, WPI, She/Her
02:19:11
Thank you all so much!
Helen Lyon - SHE
02:19:13
Thank you All! Fabulous bubble!